We have also been looking for an opportunity to take Luke back to see Dr Escolar at Pittsburgh Children's
Hospital, but busy schedules and the holiday season mean we'll have to put it off until January. Luke is still doing well, with just a few indications that the disease is progressing (his eyes flicker from side to side sometimes, and he has pretty much stopped taking food by mouth now) so we are in no rush to put him through a plane ride and a bunch of tests. But it is important to see what's going on and to get more input from the experts, so we'll head up there in the New Year. Pittsburgh in January: there's something to look forward to.
Best wishes to all and Happy Halloween!