Science, or more specifically genetic therapy is getting there. It's too late for Luke, but 24 children are on the road to beating MLD. Not a race against time anymore, but a race with time on their side. The following news segment is very inspirational. It is time for the US to get its act together and authorize genetic therapy...
http://www.cbsnews.com/news/fighting-genetic-disease-with-help-from-hiv-virus/
Here's Luke during his latest visit to hospital (All Children's Hospital in St Petersburg this time) for Botox treatment on his salivary glands. The idea is to try to reduce the amount of saliva he produces so he doesn't get so congested. He did really well. it's early days yet but hopefully it's going to help him a lot.
http://www.cbsnews.com/news/fighting-genetic-disease-with-help-from-hiv-virus/
Here's Luke during his latest visit to hospital (All Children's Hospital in St Petersburg this time) for Botox treatment on his salivary glands. The idea is to try to reduce the amount of saliva he produces so he doesn't get so congested. He did really well. it's early days yet but hopefully it's going to help him a lot.