We are planning a memorial service and celebration of Luke's life at St Andrew's Episcopal Church at 2pm on Sunday December 11th. The church is at 509 East Twiggs Street, Tampa, FL 33602. Please do not send flowers, but if you would like to make a donation in memory of Luke, please use one of the following links; all of them are linked to curing this terrible disease:
NDRD at Pittsburgh Children's Hospital: http://www.chp.edu/CHP/neurodevelopment+in+rare+disorders
European Leukodystrophies Association: http://ela-asso.com/en/
MLD Foundation: http://mldfoundation.org/
Since last night we have been overwhelmed by the ourpouring of grief and empathy, matching the constant support we have had from friends and family over the past four years, for which we will be forever grateful. The fridge and freezer are overflowing with meals and everyone is offering to help in any way they can. We have updated the support planner we used in the early days of his diagnosis (see tab above) so that anyone who wants to help can sign in. If you are reading this on Facebook you can get to the support planner through Luke's web site at www.appleboire.com.