up onHere are Luke's friends Olivia and Rylan reading to Luke the other day. He loves it when they come by to say hello, and so do we. Come again soon! That's Luke's big brother Yannick in the background. Big? You bet he's big. Almost as tall as dad and only just 14!
Luke's been going pretty well since we got back from France. The vomiting started up again but we don't really know why. He's also been having increasing trouble with his oral secretions. We are currently following up on the suggestion of having Botox injections in his salivary glands. This reduces their output without affecting anything else, like some of the available drugs do. Apparently it's been done for other MLD kids and works well. We are hunting for a local ENT specialist who can do the procedure. We'll let you know how we get on.
Thanks for checking in.
Luke's been going pretty well since we got back from France. The vomiting started up again but we don't really know why. He's also been having increasing trouble with his oral secretions. We are currently following up on the suggestion of having Botox injections in his salivary glands. This reduces their output without affecting anything else, like some of the available drugs do. Apparently it's been done for other MLD kids and works well. We are hunting for a local ENT specialist who can do the procedure. We'll let you know how we get on.
Thanks for checking in.